How was my Friday

Well we just had a fire drill and I did know where to go for this drill now yesterday when we did the Tornado Drill I was running all over the place because now that I am in the Library I wasn't sure where to go Dr. Maye informed me that I would go to the back of the Library now how convience is that since I was all over the building yesterday it is good to know I will be able to get out of the building when there is a fire and its not good to know that I would have gotten blown away during the tornado trying to get somewhere but I am ready now and my children and I will all be safe during the fire and tornado drill. I am so glad that it is Friday this has been a very long week I am so glad to be off Monday there is advantages to working in the school system off days. I am very upset that they took away all of our October days now we have none no break at all.
Alex is ready for the Auburn season. He got up this morning and put on his auburn jersey and auburn sandals and off to school he goes. He is excited about going to the ball game tomorrow, Daniel is taking him.
Saturday dad my sister and I are going to Gadsden to go and see my aunt and uncle there they have a baby gift for my sister and then Pam and my aunt and I are going to go to the Penny's outlet to shop some. Sometimes they have a lot and sometimes they have not much of anything I hope now that we have a baby to buy for we will find several things. My sister is having a baby boy in November and his name is Aidyn Maddux Young we are all so excited about him arriving I have bought him so many different things already, and so has she and my dad has had a great time buying for him. He has went and bought him clothes and a pack and play and a walker and several other outfits, this has been and uplifting occassion for him and he has had a great time buying for him.

Ok here is the newest update on My Liver

I went yesterday to get my port out and my thinking was if you put me to sleep to put it in then why not put me to sleep to take it out, but this is to simple, no sleep medicine for me he just snips the sutures and says here we go and I just hold my breath and he pulls it out well, it wasn't as bad as I thought I took it like a man lol. I was very glad to get the port out it was in my way.

Ok everyone here is what is going on with me. Since the Plasma Pheresis did not work ( this was the last thing they would try) they sat us down and had a nice talk with Billy and myself. He said he wanted the transplant ASAP. I will have to go through numerous tests like EKG and lots of blood work and also see a Physciarist ( My brother in law David Courington told me that is not a bad thing I need one of them he was joking of course but it did get a laugh out of me).

My only problem with this transplant is that someone has to pass away for me to get this transplant, I know that this person has a loved one that loves him/her and that hurt is so deep. I still hurt everyday missing my mom and I find it hard to accept that someone has to pass to help me. I do understand that the person is passing anyway but it still doesnt help the fact that someones family just lost a loved one and my heart will hurt for that family even though I will not know them.

The doctor took me off of all of my medicine because it isn't working so why take it, I don't have to see any doctors anymore until the day of my transplant yes I have to have test but I don't have to see the doctor before them because I already have and they ordered the tests. I will have to have an EKG and lots of blood work and after all of this the doctors will meet on Tuesday and discuss my situation and send me a letter to let me know what is going on.

Dr. Bynon is one of the best transplant doctors at UAB and he will be doing the surgery the surgery will last 4 hours not very long and the only thing my family has a problem with is that they will keep me asleep for 2 days after the surgery because some people panic with the respirator and if that happens the tubes could shift and that could puncture the Liver and that's not a good thing. The only thing I ask of anyone that comes to visit me while I sleep is to not talk to me till I can talk back I can't stand the thought of not being able to talk to my freinds. haha. After that I will be moved to the transplant floor for 10 to 14 days or longer and then go home. I will have to be on rejections medication for the rest of my life and on autoimmune medicines for about 4 months and then will be weened off like a baby being weened off a bottle. the only concern with these medications is that some people become a diabetic, I don't eat many sweets anyway.

All of the fatalities are very low like in the one percent and 5 percent so Dr. Bynon says there is no reason I won't swing back in a hurry and get back to a healthy life, it will slow me down some. I will be off work for about 2 months he said maybe I could go back half a week in a month but that depends on the person.

I will have to be where I can just up and go whenever they call me like 45 minutes time frame, they can hold a donor for about that long to an hour this is prep time an all so it will be a quick when it happens and really no preparations.

I want all of you to know I don't want you to worry about me I am fine with this information and situation because I know God is in control and will be with me every step of the way. I can't wait to wake up and NO ITCHING!!!! that will make it worth it all to me so be very excited for me and one more just make sure my family will be ok for those 2 days I am asleep take care of my son and daughter and husband I know they can take care of themselves but I worry about them seeing me and I can't talk to them and tell them I am ok so everyone just tell them for me.

Most of you know Sally Hyche, she is freaking out over this whole thing, she will probably need coached through all of this too but she will be ok. lol.

I love all of you and don't worry I will be great and can't wait to get this new part of my life started.. Love Mary

Hello bloggers its me finally

Well everyone I am working and working hard. Yesterday when I got home I was so tired that it took me 4 hours to cook and while everything was cooking I was laying my head on the table. We have been doing textbooks for the last 3 days and man is this a tiring job I have never been so tired in my entire life. I cooked went straight to the couch and laid down and Alex was so worried about me because I was also crying because I had been picking up the textbooks all day and had my port hurting real bad, so I decided to go on to bed and wait till Jasmine came home and eat with her later about 8 and I did get up and I felt alittle better I ate and went straight back to bed. Tonight is the youth devotion and I am not really sure what time I am suppose to be at church to escort the children to the park but I think it is 5:30 so if we are late oh well we will get there youth. I can't believe that it is Friday this has also been the fastest week of my life.

American Idol here they come

Everyone it has been so funny at my house tonight. It is 9:40 pm and Alex decides he is gonna get his attire together he wants to be different well, everything he tried on wasn't different but looked good on him of course he is mine and I am prejudice. He put on a brown sports coat with a nice casual shirt on under and had on jeans looked good until we noticed the hair it was a bit much he had it poofed out and you couldn't even see his eyes really funny looking to me. Well, Joey isn't coming home till about 8:30 tomorrow night Billy, Joey and Alex are going to leave at 1 in the morning to get there by 3 hopefully so they can get in line. I am looking forward to this starting and being over with everyone remember teen patrol lol. He still won't sing for us but hey thats ok I don't want to hear him anyway just kiddin he has practiced some and I have accidently listened to him and he sounded great. I think he got that voice from me his mom just kiddin, Alex plan is this he is planning to stay up all night tonight even though he has school tomorrow so when he gets out of school he will go to sleep and sleep till time to leave yea right, does anyone need him to do some work for them tomorrow afternoon lol. I am excited for both of them and lets remember them in your prayers as they are going to be traveling late. I told Alex if he doesn't make it real far I would make sure when he got home I would start his singing lessons he just laughed. I am going to get him lessons so anyone out there know where I can get someone to give him lessons let me know, those of you who live in the area.

I go to get my 2nd treatment tomorrow at 1 and it will last till 3:45 or a little longer this time. The treatment is called a Plasmapheresis and what this machine does is takes out your blood and purifies it it pulls out all of the impurities in your system I do have high hopes that this might work the one treatment I can't seem to tell a difference at all, the nurses said this normally doesn't work but it is worth a try. If this doesn't work the plan will be to go ahead and be evaluated for a Liver Transplant which I hope to get in May if we can hold off that long. The doctor said it isn't that my liver has worsened but the symptoms have now does that make any since not to me, but not much of any of this makes since to me I am just going through the motions with the attitude that God will take care of me and I know he will.

Update on Liver

Yesterday and today have been very tiring for me. I got to UAB yesterday morning at 5:30 and about 7 they did the procedure I didn't feel anything because they put me to sleep but let me tell you afterwards this thing hurts. It looks like I have and input and output tube hanging out of my shoulder like you could hook me up to the tv and start playing a game. Last night I was so uncomfortable this things hurts even just to breathe but it is going to be ok. Well, today I left work at 12 and had to be at UAB at 1 Dad took me thank goodness. The treatment lasted 2andhalf hours and I did fine until she was unhooking the machine from my catherer and I got to feeling nauseated so on the way home my dad was so nervous because I said dad please pull over and we were in adamsville he pulls over right in front of this hardware store where people are still working and I said dad I can't throw up here go on down the road some so he just had to stop and when I got home I was still sick they said it was because they ran the last blood in too fast but not really normally they run the blood back at 50 for heavier people she said and she forgot to turn it back for me and they think that is what made me so sick or we hope. I will be going next Mon, Wed, Fri, and the next Mon. That will be a total of 5 treatments if there is no difference then we will have a consult for the transplant. Right now I am still itching.

Yea Me

Hello everyone, I go to see Dr. Bynon tomorrow at 1, this is the actual Liver Transplant dr who will do my new procedure it got all approved thanks to Pat Gill. Here's what happened yesterday I called Kirkland and ask Dr. McGuire's nurse about the procedure and she was very ugly to me and ask me to call the insurance co and see if this central line would be covered so here I go of course I could not do it because they needed codes which only the nurses and dr. have, so I went to work and left at 10 nothing for me to do and headed to the hospital when I got there of course there was no Dr. and the nurse was gone so for some reason I headed out to visit Pat Gill (Tina's mom) and told her the situation and she got me to the right person the social director. I explained to this lady how ugly the nurse had been to me and even had the nerve to ask me to do her job which I was willing to do. So today to make a long story short McGuire's nurse was on the ball, Dr. Bynon nurse called today and I go have blood work at 12 and a chest xray afterwards and then I will have a consult with the new dr. They will go and put the central line in they think on Thursday and hopefully she said we could have the procedure done on Fri. She said I could have as many as 5 treatments a week until hopefully we get the itching under control. There is light at the end of my tunnel and I am so thankful. yea me. Thanks Pat

My house guest left me

Well, Kim and the kids came and stayed some nights with me and when they left on Friday I felt lonely I felt like I had family leaving to go back somewhere that lived far off. Levi brought alot of life into our house he is the sweetest boy and I miss my bed buddy. When it was time for bed him and I would go to Alex room and I would turn off the light and away into sleepy time we went. Addi did her own little thing she is also a light to the world God blessed us with such sweet cousins and we are so thankful to have them in our lives. I really enjoyed being with Levi I learned that he doesn't like WAl-Mart, neither do I sometimes he just threw a fit like I have wanted to do several times while waiting in a line at night where 2 registers are open and 40 people in line so "Go Levi" lol. The floor does look great and I am proud of yall keep up the great work.

My new Liver update.

Today I was itching to no ends well that is no news to those who know me. Dr. McGuire called me today and informed me that when he gets this procedure approved through the insurance co. which will be next week he hopes I can get it. Yea me. The procedure is a catherer and it will have tubes that run to different veins and I will have to go either 1 time or 2 times a month to have the medicine put in, he said it is like Dialysis but the medicine is different. I will not be sick from this but the itching should STOP! At this point I didn't care what he did as long as he did something. He said that this is the only next step. The other medicine will progress the liver tremendously. He said he will do blood tests next week and check the liver progression and see if there is a big change in my points hopefully not he said but if so we will go from there. This procedure is a one day procedure and I will get a dose of the medicine while I am there. Yes all of this is very nerve wrecking but I know that this doctor is the best and he will only do what is in my best interest, and plus God is on my side and he will definitely take care of me. The Insurance has to approve this procedure to make sure it is needed yea like someone would want to just have this procedure for fun. This is my new medical update that I know all of you are so interested in. haha I hope to get it done soon. He said maybe next week. Mary